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About Duchenne Muscular Dystrophy

Because there is no cure for DMD, the life expectancy for a diagnosed child is the late twenties.

Duchenne’s muscular dystrophy (DMD) is an inherited muscle wasting disease characterized by progressive muscle weakness. This muscle weakness occurs when an affected child’s muscle tissue is unable to produce a structural protein called dystrophin. Without this vital protein, muscles suffer significant damage and eventually die.

The progression of DMD causes orthopedic complications, respiratory failure, and heart failure. Boys with DMD are diagnosed in early childhood and are confined to a wheelchair by early adolescence. Because there is no cure for DMD, the life expectancy for a diagnosed child is the late twenties.

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Why 3 Brothers Against Duchenne?

The story behind Brotherhood Knot in the Romito logoThe logo started with the Brotherhood Knot. 
 
For Duchenne families, they are part of a brotherhood, hoping for a cure, connected by the disease.  

For Duchenne patients, they are young men and boys, a brotherhood, fighting.  

For everyone, connected by a cause, to find a cure, to improve the lives of those living with the disease.

All connected, all united, brothers in arms, a brotherhood united, a knot holding them together.  

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The Romito Foundation's History

Dominick, Kaleb & Collin Romito

In 2007 the Romito family was hit with devastating news, Dominic was diagnosed with Duchenne Muscular Dystrophy (DMD). The neurologist explained to them that Dominic’s muscles would rapidly deteriorate, he would lose the ability to walk, to use his arms, the ability to take care of himself. Eventually Duchenne would attack his heart and lungs and the disease would take his life.

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Meet the Romito Boys:

the 3 Brothers against duchene's: Dominick, Kaleb & Collin Romito

Dominic, Collin, and Kaleb.  Each one of them has a form of Muscular Dystrophy called Duchenne Muscular Dystrophy (DMD).  It effects an estimated 15,000 - 20,000 boys in the United States.  

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